Heaven

Joshua went to heaven on Thursday, July 21, 2011. I may or may not post later. I will do my best to post pictures when I can. So many things to do right now. I miss my lil baby so much already. I feel lost without him. I know he doesnt hurt anymore. The Lord is my strength and my guide.

Hernia Hernia Go Away!

WEll when he was in ICU they discovered he had again another hernia (from all the gagging). The only thing to do is surgery again but he is to much of a high risk to go under right now. We finally got him stable! However, he threw up twice last thursday. He also has been having more food in his tummy than usual. So this means at times he is not digesting everything because of the hernia (food is shifting everywhere). It is not a constant thing yet so not gonna go into worry mode yet. I really don't think we will do surgery unless he really isn't digesting 1/2 of his usual intake. This will then be a major problem. Pedi doesn't think he will get through surgery if he does go under. So yes we traded one problem for another in the mean time. Another thing that can also affect him is throwing up and aspriating on it (going into lungs). It's like one BIG CYCLE. We are going to see the surgeon in Aug. to discuss what we basically already know (haha).

On a good note.....he will be turning 3 years old on June 25!!! He has gone through so much in 3 years....gosh my baby boy is a super human baby. Thank you Lord for these blessed (although tough at many times) years of having time with my precious lil guy. I think about all the kisses, hugs, half smiles, and unspoken communication he shows us with those beautiful eyes. He is our angel. Thank you Lord for Joshua.

cruise control

so we've been seeing the pediatrican every week so he can keep track and monitor him. The last thing he said to us was we were on cruise control. In this he means he isn't getting better and isn't getting worse. However the last couple of days we managed to take him off oxygen and the cpap (blows air to keep his airway opened). He actually only uses the cpap while asleep. He is such a fighter...Joshua is superbaby for sure. So he actually looks better!!!! Will post later, it's Isaac's b-day today so we are off to celebrate (6yrs). Thank you for all your prayers. Just continue to pray for God's will...that is the only thing I pray for. Thank you again.

Sleep Baby Sleep

Well I really don't have a lot of time to post a whole lot right now. Joshua is still sick. He is currently on 3liters of oxygen and throughout the day on the cpap (looks like an oxygen mask but blows air to keep airway opened when he is having a hard time). We are doing treatments and doing everything like we usually do except we aren't on antibiotics. He has already tried 3-4 different ones and nothing really helped. So now we just wait and give him time. Hopefully that left side opens up and he clears up more. Right now he is needing lots of suctioning and constant monitoring. He does look more relaxed at home and rests more. He sleeps on and off throughout the day. So basically the key phrase I hear a lot from the doctors is "unfortunately we don't have a crystal ball" so Joshua can get better slowly or worse slowly. Well, at this point I'm just taking it day by day. I thank God for every day he gives me with him....whether it is days, months, or many years. However and whatever goes on I know the Lord knows best. This is what I am trusting and believing. My prayer is for Joshua to be happy and not suffer. Everything else will be taken care of by my Father in Heaven. So for now I am just letting him sleep all he wants cause he really needs to rest. Staying in the hospital for long periods of time really is draining. I know I haven't caught by yet and I'm not the one getting treatments and suctioned constantly....I can't imagine how tired he must feel.

Those of you who have been praying for us I thank you. I pray for strength, peace, and his Will. Another quick thing I want to address. Sometimes I think people want to be their for us, do something for us, or even say something to us. However, it is hard to figure out "what". I just want to say it's ok. Please don't concentrate on these things because sometimes these things aren't even the most important things that need to be done. The most important thing to us is to know you are there. Sometimes the best thing you can do is just listen. A recent thing I shared with a friend was telling them we are really not looking or waiting for the magical comforting word/words of wisdom. I think when people focus so much on these things it takes over and then all you have is avoidence. When it gets to hard for people they tend to just avoid the situation. In this case, I understand it is hard for some to see my little guy sick. Just having someone be there is the best thing.

As far as pictures I will have to post later.

updates (Nov - April)----- Joshua Comes home sick from ICU

OK so I haven't posted anything in a long while. It has been tough lately. However I'm still living and learning....that's for sure! Well my last post he had surgery stayed in hospital from November 12-14...awesome right? Yes, then December 16 he was admitted again basically same (lungs and slight cold). It sent us straight to ICU. He was there from Dec. 16-22.....again another pretty short stay...thank you Lord. Still pretty hard time for us especially being so close to Christmas. Of course being the goof I am I pretty much went in there telling the nurses we were there just as a visit and I had a talk with Joshie. I made up my mind we were getting out quick cause I still didn't have all our presents yet. I was giving him only until Monday (3-4days). Joshua of course likes to do his own thing and we didn't leave until Tuesday. How funny is that!! I really think the Lord likes to see how I'm going to react. It's sometimes so comical the way things turn out. I told the nurses Joshua was just being stubborn. You better believe I was in there making them rearrange everything just so I could hold him in order to do manual cpt (patting his back firmly to loosen the stuff up in his lungs).


Well, after all this excitement (kidding of course)I went back to work! It felt so good to go back to teaching. Actually I didn't really go back full time I decided to just enter into the world of substitutes. My husband says he could see a difference in me as far as doing something I love doing. It was nice while it lasted. I do have to say it made me feel good when people gave me compliments about my teaching and classroom management. For a while it made me feel a little more normal or at least I had a little something that I had before I entered this whole "other world". Since I was able to go to different classrooms and schools I also met many people. At times I was able to share my experiences with other educators. I tell you...Joshie is such a little testimony even when I feel it is the hardest time for us. I also stopped substitute teaching to start tutoring for tests coming up. All this and juggled my boys very active schedules....juijitsu....tball...football...basketball...soccer...boy scouts...etc..yes many activities. We do balance it out though to remain sane of course (keep in mind I have 4 boys... hahah).

Around March 11 Joshie became sick and it just escalated from there. It really wasn't that bad at first. I called the Dr. and got some stuff taken care of. He got better at first and then he was good during the days but horrible during the nights. This means we both weren't getting a whole lot of sleep. I also was thinking it might be allergies. I still think it played a role to where we are now. Towards the end of April we had already tried at least 3 antibiotics and couple of steroids. I took him in to DR. visit and to ER (which I knew they wouldn't keep him in cause during the day he was ok--not that bad). Then finally went in on April 26 and was admitted. He has been in ICU for about three weeks now. I will post more tomorrow and post pictures also.I am exhausted right now. He was just discharged late this afternoon but he is still a very sick little baby. I will give details tomorrow of what is going on. For now I will say...there is not much more they can really do but wait and see. His lungs are not strong. He is very tired and not really fighting as strong as before. This time its really been hard for him. They discharged us cause they really weren't doing a whole lot anymore. He can either get better slowly or get worse slowly. However, God is great and its been quite a testing time for us. It is awesome to know that he is still sending us little signs and fresh revelations even at the hardest time in our life. We are needing strength and peace more than ever right now. I will share more tomorrow.

Back Home and Sick

Well, surgery went well and we only stayed at the PICU for about 3 days. Thank you for all your prayers because I truly believe that is what got us home so fast. We have never stayed such a short time and we have never been released straight from PICU. A couple of days later after we came home he began to have high fever. It lasted for about a week. I was very concerned about it especially since he had just had surgery. However, a few tests and xray later (I had to practically nag at the surgeon to run some tests and didn't accept it was "just his body getting use to it") we found out he had STREP THROAT. Yes, strep throat. I was so glad that is all he had and nothing else that would drag us back to the hospital. Thank you to those who have shown us your support. I especially want to thank those of you who just simply let us know you are praying. It means the world to us. I really believe it helps us get through these tough times.

While at the hospital I met a mom who had her child on a vent and was facing the decision of letting him go. It was truly heart breaking to hear what she had been going through. I went into the PICU hallway and began to pray with her. At that moment I really didn't care who saw or what anyone thought. I really think the Lord puts these people in my path for some reason or another. I know at that moment it is not my strength or faith that allows me to react in prayer. Honestly, I don't even feel like praying for anything sometimes. A couple of hours later I'm a mess. I feel like I want to fall apart emotionally. Here I am waiting for them to give me word on how the surgery is going with MY SON and feel extremely nervous, spiritually not at my best, and feel physically drained. Who the heck do I think I am praying for someone else??!! I know it's only by God's Grace and His Strength. I also know many people pray for us and Joshua. This is probably what sustains us through this crazy ride. I even joked with my parents telling them I have to learn to not talk to anyone or answer any questions...basically stick to myself so I won't "get involved". I get so emotional and everything becomes very personal. Well, in the very beginning of our journey I did say Joshua would do something GREAT. It's like a giant puzzle that I know the Lord will bring all together someday.

Joshua has not been doing well this week. He has been choking and gagging on thick secretions and doesn't seem to clear. I am really concerned about his lungs. This is the way he gets when his lungs collapse. He just started on antibiotics and other meds. Hopefully this will do the trick. We have been suctioning him a lot. It also gets scary when he gets really red from choking because he can't bring it up. He is miserable and cries because of all the suctioning. It is hard seeing him tear up and heart breaking to see the look on his face as soon as we turn on the suction machine. I really was hoping not to have to suction so much especially since he just had surgery and they fixed the hernia. We really don't have a choice especially if he is choking. It is horrible. Pray he gets better soon so he doesn't loosen the fundoplication and get another hernia. I spoke to the surgeon and he said there really isn't much we can do about it. We can't stop suctioning because he doesn't always cough it up and obviously airway is priority.

Joshua Calling ALL Prayer Warriors!!!!!

Halloween 09

GI Joe



Joshua will be going into surgery tomorrow morning. We need to be there by 5:45am! So, what am I doing still up?? I can't sleep. Different thoughts going through my mind... Will Pray.