June 25--- --CPR & placed on ventilator
June 27------seizures stabilized due to medications
June 29/30--signs of kidneys functioning
July 8--------afternoon nurse reports ventilator un-lodged itself unexplainably causing decision for removal and nasal cannula placed.
July 9-------Joshua doesn't tolerate feedings through oral gastric tube
July 12------nasal cannula is removed and he begins breathing on his own & tolerates feeding
July 13 -----feeding tube is placed in nose to free up his mouth
July 14 -----begins to make noises with his little mouth
July 18------passes hearing test and Dr. reports liver is swollen but not a concern
July 19-- ---due to inability to suck, surgery performed for gastrostomy tube
July 24/25 --second liver exam shows no change, neurologist reports third EEG still shows abnormality in the brain but does show slight improvements
July 26------ Joshua shows little signs ability to suck......& Joshua COMES HOME!!!
**************NEW UPDATES ********************
August 11----Joshua discovers his voice!! first vocal noise (beginning of his cry)
August 27----EEG looks better than last (still spiked activity--seizure activity under control
w/meds)
Oct. 4------liver report looks better
Nov.16-----diagnosed with infantile spasms/EEG is worse than last because of spasms
Nov. 29----cardiologist gives good report, everything looks good
Dec. 22-23---admitted to hospital (meds cause lungs to be filled with secretions) & diagnosed with laryngo malacia
April 23, 2008------Joshua's First smile!!!!!!!!!!!!!!!
So, as of right now his lungs, liver, & heart are doing fine. He still has to be suctioned because of his swallowing & laryngo malacia. We are still working with his suckling. He is crying much louder now and more frequently. The infantile spasms have gotten better, we are still working on getting rid of them completely (changing up meds). He is also starting to pick his head up even more and his eye contact is better also. There are times where I catch him focusing on things/people. He will even track a tiny bit at times. His trunk is still weak but my little determined baby works very hard. At this time he is attending Physical Therapy, Speech Therapy, and we have just added Occupational Therapy. Keep Praying for him, he has come a long way!!!!!!!!!
Saturday, April 26, 2008
Timeline given to some of you after NICU & Updates
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1 comments:
I found your link on cafemom. What an awesome little miracle you have there!
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